Happy and Healthy holidays to all, especially the one who care enough for us to read this entire blog.
My recent visit to a top Surgeon at U.F.Health (Shands), Gainesville, Fl revealed I am not a candidate for surgery, I could die on the operating table with an open abdomen. So I could say my life is over, but no way, for those of you who know me well and have followed me and cared for me in the last eight years know that I am a fighter. This is also an education for my relatives who make fun of me for a fat stomach and talk about me behind my back. We victims know who you are and don't appreciate it one bit. It has been documented for the last 8 years of my health problems, members of my family refer to me as the one in the family "that will do anything to get attention". Well, I have words for you, but I will not put them on here as other true friends and believers do support me emotionally. When I dropped in unexpectedly at a family Mennonite funeral last summer on my way up from Florida, wearing a big black dress for traveling. I could have been bought for a nickel with all the stares, whispers, watching every move I made, ignoring my outreached hands for a handshake, no response to me trying to start a conversation, only with remarks like "you want to see me", "or I'm surprised you remember my name". I could have said, it's the same distance from your house to mine, but they wouldn't have gotten it. I kept talking and moving around to prevent the tears from gushing down my cheeks as my broken heart was bleeding for love and acceptance. BUT no one would accept me because I was fat. I stretched out both arms to hug an aunt and she turned from me and walked away. As my daughter and I drove away to go see my life-long friend who was dying of Cancer and was near death's door, I wanted to burst out crying but it was a short distance from Willow Street to Quaker Hills, I had to stay tough for my buddy, who was there for me for 52 years.
Emotional distress is a lot of our suffering from failed lap bands. Any kind of Weight loss surgery is stressful. The weeks of preparation and all the doctors' visits afterward. People hear you had the surgery and they immediately look at your stomach and expect to see you have dropped 8 dress sizes. Why not?" they ask, looks to me like it didn't work or you are not following the rules. By reading my earlier blog you can see I was in the hospital almost 2 month and nearly died twice.
I had a stroke in 1994 and my health has been up and down and mostly poor ever since. I can't go on long walks as my "core" will not allow it. then the hips with the pain of Torn Ham Strings X3. I am full of arthritis, from my shoulders and spine to my ankles and feet. I go to physical therapy, eat certain foods, take meds, have gone to Pain Management for the last 22 years, and use Acupuncture. Of course the eyes and the ears are failing from old age, I am 77 after all and of course I need a hearing aid, but can't afford it.
The HERNIA from the lap band surgeries is so large, it is entwining around the organs, particularly my liver which I am very concerned about. I have shed tears over this failed surgery of these doctors here in Florida. My organs are protected by the skin on my abdomen ONLY. So I cannot poke, punch, bump or tug my stomach. No vacuuming, gardening, using a shovel, etc. One surgeon used Pigskin as the mesh and it slipped loose due to his using a running stitch. It has sinced dissolved, but it did help the hernia get started to wrap around my organs. There is a possibility that a section of my small intestines will have to be removed due to his surgery and his inability to close the surgical opening. I was put on a Wound-VAC and sent home with a visiting nurse to care for it for 6 month, with the occasional abscess and infection over the next 2 years. It took longer to regain my strength.
In the meantime, this happened in the Great Recession which affected Kim's life by being laid off, having 2 heart attacks, and losing our home like so many others--through no fault of our own. She was fortunate enough to be awarded a fellowship to go back to college, but had to get student loans to live on. She is still paying that off, over 6 figures since it also included her 4 year masters degree. This is why she works a lot of overtime in the evenings and the weekends. My care is given to me to help me get dressed before she goes to work in the morning. I pretty much fend for myself in my Surgical Binder and stockings during the day. I do appreciate the dollars that my sisters sent.
Anxiety and Depression is a disease prior surgery and after surgery. Most of us have been sexually molested, raped, and beaten by our family members. People we thought we could trust and count on. I should know by now that my family background, Mennonitism, is not one that recognizes a family member they judge as not living their way of life. If you live in a pretty house and can go to church every Sunday all dressed up in a new outfit to show off. Oh, yeah with the Mennonites, you gotta drive a nice car. They give their little experienced teenagers, big SUV to drive to S.S. Class. Never mind they only have $1.00 for the collection. I am so glad I went to Counseling for 30-40 years to be deprogrammed of the -ISM .
All our lives we want to be accepted. We try to wear the latest fashion to fit in with society and maybe, just maybe someone will talk to us and like us. But OOPS the dress doesn't fit. We see adds about Bariatric and take a chance on happiness. Some of us DIE, some us suffer the rest of our lives till we DIE. What is so sad is that the folks we are trying to please and get some love and attention from don't care about us.
The point is, that in the end it is only you.
The point being I love my daughter and myself.
The point being we chubby folks are more to love.
I have found some good friends that believe me and of course my daughter Kim is my most sacred person in my life. Ironically, I was a single mother, and she is the best thing that ever happened to me. She helps dress me in the mornings before she goes to work and starts those long days. And in the evening keeps the home in working order,(the lawn needs some work and a good housecleaning).
Kim can only do so much as she is on Heart medicine after having 2 heart attacks and received stints in the wonderful Cleveland Clinic in Ohio.
I hope this update in my blog helps some women out there, please let me know I'll read it all. Hey anyone want to send me a few bucks, my email is krazzeemm@yahoo.com through Paypal.
May the UNIVERSE Bless you and keep looking up to that ever-revealing sky.
Look at yourself in the mirror the first thing in the morning and say " I LOVE YOU! "
Bless you one and all. Mary